Remembering another PD warrior
By Sheryl Jedlinski Early this month, the Parkinson’s disease community lost yet another long-time patient advocate and I lost a friend of more than 20 years. Linda Herman and I met … Continue reading
PD patients lose a strong advocate
The Parkinson’s disease community lost one of its most influential early patient advocates with the passing of Perry Cohen, PhD on May 9. Diagnosed with Parkinson’s disease (PD) in 1996, he dedicated … Continue reading
Breaking the silence on incontinence
By Sheryl Jedlinski I recently came within seconds of living out one of my worst nightmares… becoming incontinent in public and exposing my embarrassing secret to the world. For the … Continue reading
Who moved my Sinemet?
By Sheryl Jedlinski When drug maker Merck announced that its brand name SINEMET® would be unavailable in the United States for the foreseeable future, I felt like someone had pulled the … Continue reading
Losing a great physician
by Sheryl Jedlinski My Movement Disorders Specialist and friend of more than 20 years recently announced that she will close her clinical practice and stop seeing patients after June 30. … Continue reading
Honoring the memory of those who walked before us
By Sheryl Jedlinski I joined the 2018 American Parkinson Disease Association (APDA) Optimism Walk to honor the memory of my friend Jo-Ann Golec, who died last year, having lived a … Continue reading
Physical therapy can make “off” time work for you
By Shery Jedlinski I went for a physical therapy (PT) evaluation seeking confirmation that the long-term gains I achieved through daily exercise were disappearing. How else could I explain why … Continue reading
It Takes Two to Tango: Choreographing Successful Doctor-Patient Relationships
By Sheryl Jedlinski When I tell people I’ve had Parkinson’s disease for 20 years, the first thing they ask is who my movement disorders specialist (MDS) is and what medicines … Continue reading
There’s always something new to learn
By Sheryl Jedlinski Having participated in educational programs related to Parkinson’s disease for more than 20 years, I sometimes start thinking there is nothing new to learn, and that I … Continue reading
Profits from new book to benefit PD research
By Sheryl Jedlinski With the abundant support of the Parkinson’s community, my newly published book, “Parkinson’s? You’re kidding me, right? One woman’s unshakeable belief in overcoming a shaky diagnosis!” is … Continue reading
Bringing my world back into focus
By Sheryl Jedlinski Over the past year, I have been experiencing increasing blurriness and double vision, especially when working at my computer or reading. I find myself straining to bring … Continue reading
Managing Parkinson’s with exercise
By Sheryl Jedlinski Do the results of every new Parkinson’s exercise study leave you confused about the role of exercise in managing this progressive disease? If so, you are not … Continue reading
With gratitude, I announce the publication of my first book
Twenty years of fighting the good fight. Sixty-five drafts of the manuscript to get the book to press. A publishing entity that didn’t exist a month ago. I’m delighted to … Continue reading
While we’re working for the cure…
Hearing Michael J. Fox tell Sunday Morning anchor Jane Pauley that he does not expect to see a cure for Parkinson’s disease in his lifetime, was not what I wanted … Continue reading
