Living Well with Parkinsons Disease

Dancing in the Rain: Lessons Learned on my Personal Journey with PD (more at www.PDPlan4Life.com) Copyright 2013-20 Sheryl Jedlinski

Strong to the end

As those of you who follow this blog know, Sheryl has been suffering from both PD and cancer for many years. This morning, cancer took our beloved Sheryl and she … Continue reading

March 12, 2022 · 9 Comments

Remembering another PD warrior

By Sheryl Jedlinski Early this month, the Parkinson’s disease community lost yet another long-time patient advocate and I lost a friend of more than 20 years. Linda Herman and I met … Continue reading

July 15, 2021 · 1 Comment

PD patients lose a strong advocate

The Parkinson’s disease community lost one of its most influential early patient advocates with the passing of Perry Cohen, PhD on May 9. Diagnosed with Parkinson’s disease (PD) in 1996, he dedicated … Continue reading

May 21, 2021 · 1 Comment

Second opinions lead to better care

  By Sheryl Jedlinski We go to doctors in search of answers. We want to know what’s wrong with us, and what treatments we might consider. Even doctors who follow … Continue reading

October 19, 2020 · 5 Comments

Still no end in sight for Sinemet shortage

By Sheryl Jedlinski “Those who fail to learn from history are doomed to repeat it,” said Winston Churchill. No one group knows this better, I suspect, than people with Parkinson’s … Continue reading

November 19, 2019 · Leave a comment

Still no end in sight for Sinemet shortage

By Sheryl Jedlinski “Those who fail to learn from history are doomed to repeat it,” said Winston Churchill. No one group knows this better, I suspect, than people with Parkinson’s … Continue reading

November 19, 2019 · 2 Comments

Throw open the doors!

By Sheryl Jedlinski When I started using a walker last year, my therapist said it would “open doors” for me. I assumed she meant doors to public restrooms, restaurants, movie … Continue reading

July 16, 2019 · 2 Comments

It Takes Two to Tango: Choreographing Successful Doctor-Patient Relationships

By Sheryl Jedlinski When I tell people I’ve had Parkinson’s disease for 20 years, the first thing they ask is who my movement disorders specialist (MDS) is and what medicines … Continue reading

July 8, 2018 · 2 Comments

There’s always something new to learn

By Sheryl Jedlinski Having participated in educational programs related to Parkinson’s disease for more than 20 years, I sometimes start thinking there is nothing new to learn, and that I … Continue reading

May 6, 2018 · Leave a comment

Managing Parkinson’s with exercise

By Sheryl Jedlinski Do the results of every new Parkinson’s exercise study leave you confused about the role of exercise in managing this progressive disease? If so, you are not … Continue reading

January 29, 2018 · Leave a comment

With gratitude, I announce the publication of my first book

Twenty years of fighting the good fight. Sixty-five drafts of the manuscript to get the book to press. A publishing entity that didn’t exist a month ago. I’m delighted to … Continue reading

January 5, 2018 · 10 Comments

The personal challenge of raising PD awareness

By Sheryl Jedlinski I unexpectedly ran into a former neighbor I hadn’t seen in 35 years. We immediately picked up where we had left off, sharing news of family, friends, … Continue reading

April 27, 2017 · 2 Comments

What’s up with levodopa?

By Sheryl Jedlinski One of the questions people with Parkinson’s are always asking is, ‘How is it that 50 years after its introduction, billions of research dollars later, and a … Continue reading

September 30, 2016 · 1 Comment

Envisioning a Parkinson’s free world

By Sheryl Jedlinski As my husband, Tony, and I entered the Oregon Convention Center for the opening of the 2016 World Parkinson’s Congress, I could hardly believe we had made … Continue reading

September 21, 2016 · 3 Comments

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