Dancing in the Rain: Lessons Learned on my Personal Journey with PD (more at www.PDPlan4Life.com) Copyright 2013-18 Sheryl Jedlinski
By Sheryl Jedlinski
I unexpectedly ran into a former neighbor I hadn’t seen in 35 years. We immediately picked up where we had left off, sharing news of family, friends, and everything except the obvious — the walking sticks holding me upright. Like the proverbial “elephant in the room” that everyone sees, but ignores, my sticks bear silent witness to Parkinson’s Awareness Month.
After so much time has elapsed, what would it finally take for me to raise the veil of silence and tell my friend that I’ve had PD for 18 years? Is there ever a good time, place, or way to tell those closest to us that we have a chronic, progressive, incurable disease? Probably not, but neither does keeping secrets move us closer to our goals of improved treatments, quality of life, and a cure.
Those of us who have PD, or care for those who do, hold the key to putting an end to this disease by changing our approach. This includes:
This campaign is personal. We are in the fight for our lives. We can conquer this disease one person and one story at a time.