Living Well with Parkinsons Disease

Dancing in the Rain: Lessons Learned on my Personal Journey with PD (more at www.PDPlan4Life.com) Copyright 2013-20 Sheryl Jedlinski

Flipping phones

By Sheryl Jedlinski An Apple loyalist since Steve Jobs marketed his first personal computer in the late 1970’s, it saddened me to trade in my iPhone for an Android flip … Continue reading

October 5, 2021 · Leave a comment

Expert opinion is empowering

By Sheryl Jedlinski My latest CT scans reveal a recurrence of my cancer, spreading beyond my original tumor discovered six years ago. My doctor assured me that this was more … Continue reading

August 31, 2021 · 1 Comment

Remembering another PD warrior

By Sheryl Jedlinski Early this month, the Parkinson’s disease community lost yet another long-time patient advocate and I lost a friend of more than 20 years. Linda Herman and I met … Continue reading

July 15, 2021 · Leave a comment

PD patients lose a strong advocate

The Parkinson’s disease community lost one of its most influential early patient advocates with the passing of Perry Cohen, PhD on May 9. Diagnosed with Parkinson’s disease (PD) in 1996, he dedicated … Continue reading

May 21, 2021 · 1 Comment

Navigating the FOG

By Sheryl Jedlinski I live my life on “high alert,” waiting for the next Parkinson’s disease symptom to blind side me. Most recently, the culprit was “freezing of gait” (FOG). … Continue reading

March 23, 2021 · 3 Comments

No gym? No problem!

By Sheryl Jedlinski When fitness facility operations first were curtailed to help slow the spread of the COVID-19 pandemic, I found myself locked out of my gym with no access … Continue reading

March 1, 2021 · Leave a comment

Saving my teeth

By Sheryl Jedlinski I have never been a relaxed dental patient. My gag reflex is easily triggered, and I am extremely claustrophobic, necessitating my dentist get his hands and his … Continue reading

February 4, 2021 · 1 Comment

PD first took my sense of smell, and now my “magic” touch

  By Sheryl Jedlinski I left my hubby, Tony, asleep in our bed, imagining how surprised he would be to awaken to the smell and taste of our family’s favorite … Continue reading

December 21, 2020 · 6 Comments

Thankful to be alive

By Sheryl Jedlinski This Thanksgiving I am grateful to be alive, having eluded the deadly grasp of the ongoing COVID-19 pandemic; exceeded the five-year survival mark for people with advanced … Continue reading

November 23, 2020 · 6 Comments

Second opinions lead to better care

  By Sheryl Jedlinski We go to doctors in search of answers. We want to know what’s wrong with us, and what treatments we might consider. Even doctors who follow … Continue reading

October 19, 2020 · 5 Comments

Taking control: My approach to dealing with chronic disease

by Sheryl Jedlinski Living with two progressive, incurable diseases — Parkinson’s and cancer – has taught me to be a strong advocate for myself, learning and speaking up for my … Continue reading

August 6, 2020 · 5 Comments

Nocturnal leg cramps take their toll

By Sheryl Jedlinski Most nights I awake about 2 a.m. … writhing in pain, drenched in sweat, and yelling for help. One of my legs is spasming out of control … Continue reading

June 7, 2020 · Leave a comment

Shopping then and now

By Sheryl Jedlinski Growing up on Long Island in the 1960’s, my friends and I looked forward to spending our Saturdays at one of the new enclosed shopping malls becoming … Continue reading

March 30, 2020 · Leave a comment

Keeping calm when “The sky is falling”

By Sheryl Jedlinski Everything I know about pandemics I learned from Hollywood movies that play out our worst nightmare scenarios on the big screen. Providing the creepiness of horror movies and … Continue reading

March 21, 2020 · 3 Comments

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Read more of Sheryl’s humorous stories and helpful tips at PDPlan4Life.com