Who moved my Sinemet?
By Sheryl Jedlinski When drug maker Merck announced that its brand name SINEMET® would be unavailable in the United States for the foreseeable future, I felt like someone had pulled the … Continue reading
Envisioning a Parkinson’s free world
By Sheryl Jedlinski As my husband, Tony, and I entered the Oregon Convention Center for the opening of the 2016 World Parkinson’s Congress, I could hardly believe we had made … Continue reading
Wake-up call for PD awareness
By Sheryl Jedlinski Conservative pundits are fueling rumors that Hillary Clinton has Parkinson’s disease, and is therefore unfit to be President. Their fairytale is based on a diagnosis made by a … Continue reading
Finding courage
By Sheryl Jedlinski As teens, my cousin, Wanda, and I would alternate summers at each other’s homes in California and New York. As much as we enjoyed our time together, … Continue reading
One million strong
By Sheryl Jedlinski The number of Americans living with Parkinson’s disease has surpassed one million, and 60,000 more swell our ranks each year. While this is not something to celebrate, … Continue reading
Let the buyer beware
I was commiserating with a friend about our various aches and pains when she asked if I had tried emu oil. She had heard television’s Dr. Oz, a board … Continue reading
Fox initiative promises patients seat at the table
When asked to be an ambassador for a new health initiative co-sponsored by the Michael J. Fox Foundation (MJFF) and Abbvie — I jumped at the opportunity to be part … Continue reading
Raising awareness means telling our stories
I recently noticed that Holocaust Remembrance Day typically falls during Parkinson’s Awareness Month. How is it that one of the most heinous crimes against humanity came to be memorialized against … Continue reading
Your help will make the difference
Halfway through Parkinson’s awareness month, it occurs to me that we are doing the same things we’ve always done and expecting different outcomes. This is as effective as banging our … Continue reading
Thanks to our “Tulip Spotters”
A big thank you to our volunteer “Tulip Spotters” who responded right away to my call to post Parkinson’s-related events on a free, online, interactive calendar at http://www.pdcalendar.info The idea … Continue reading
“Tear down the walls”
With Parkinson’s Awareness Month just around the corner, my husband, Tony, and I are gifting a free, online, interactive calendar http://www.pdcalendar.info to the extended Parkinson’s community. This shared, single space will … Continue reading
I have a Parkinson’s dream
Like the late Martin Luther King Jr., I, too, have a dream inspired by experiences that have changed the way I see the world going forward. My dream is that … Continue reading
Why we still have no cure for PD
The most eye-opening factoid I took away from the 2013 World Parkinson Congress (WPC) is that almost one-third of all clinical trials fail to enroll enough participants to get off … Continue reading
Another voice for the cure
News that 11-time Grammy winner Linda Ronstadt has been diagnosed with Parkinson’s disease has renewed discussion about how we fund medical research in our country. Many see Ronstadt’s personal tragedy … Continue reading
Living Well with Parkinsons Disease 