Living Well with Parkinsons Disease

Dancing in the Rain: Lessons Learned on my Personal Journey with PD (more at Copyright 2013-16 Sheryl Jedlinski

About this blog

I started this personal blog to share my experience as a person living with young onset Parkinson’s disease and facing two total knee replacements. My Parkinson’s has remained fairly stable these last few years and my bionic knees have enabled me to resume  my regular activities without pain. My only issue is that I  still need help putting on my socks and shoes, No one told me that for an additional fee, I could have gotten bionic hamstrings as well. Not really, but it’s a nice dream.

I wish that I had been able to end my story here, but that was not to be. This fall, out of the blue, I was diagnosed with an aggressive form of uterine cancer that had already spread elseewhere, necessitating extensive surgery, followed by  chemo.

My hope is that the lessons I’ve learned on my own personal journey will inspire and empower others to chart their own course to living well with Parkinson’s. This has been my goal since I co-founded with a friend almost eight years ago.

I was diagnosed with young onset Parkinson’s disease 17 years ago at age 44.  My husband and I had begun planning our “empty nester” years — and my having a progressive, incurable disease was not in the picture. Eventually I learned that together we would find a way to get on with our life and dream new dreams, even if it meant learning to dance in the rain.

One comment on “About this blog

  1. Sharie Freudenberger
    February 12, 2016

    Keep up truly great attitude even in the face of 2015’s big disgusting challenge for,sf

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Read more of Sheryl’s humorous stories and helpful tips at

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