Gone in a blink
Sitting beside my husband witnessing the marriage of one of our youngest son’s earliest buddies, I wondered where the time had gone. In the second it takes to blink, 30 … Continue reading
Talk of using walker abruptly ends PD honeymoon
My 15-year honeymoon with Parkinson’s disease ended unexpectedly when my new physical therapist, Mia, completed a three-hour evaluation and recommended I start using a walker. Her words hit me like … Continue reading
An American hero, a role model for all time
Seventy-five years ago this Fourth of July weekend, New York Yankees first baseman Lou Gehrig voluntarily bid farewell to the sport he loved. It took a progressive, incurable disease that … Continue reading
Let the buyer beware
I was commiserating with a friend about our various aches and pains when she asked if I had tried emu oil. She had heard television’s Dr. Oz, a board … Continue reading
Fox initiative promises patients seat at the table
When asked to be an ambassador for a new health initiative co-sponsored by the Michael J. Fox Foundation (MJFF) and Abbvie — I jumped at the opportunity to be part … Continue reading
Coming soon to a city near you: Partners in Parkinson’s
The Michael J. Fox Foundation (MJFF) is coming to a city near you to guide you in assembling your best possible team of care providers, taking an active role in … Continue reading
Always wear clean underwear
Getting dressed takes longer and longer as Parkinson’s disease progresses, prompting us to continually seek ways to shave a few minutes off the process. This is why I wear my … Continue reading
Lame excuses for not exercising
According to the National Health Research Institute in Taiwan just “15 minutes of exercise a day, or about 90 minutes a week, can add years to your life.” Now they … Continue reading
Raising awareness means telling our stories
I recently noticed that Holocaust Remembrance Day typically falls during Parkinson’s Awareness Month. How is it that one of the most heinous crimes against humanity came to be memorialized against … Continue reading
Your help will make the difference
Halfway through Parkinson’s awareness month, it occurs to me that we are doing the same things we’ve always done and expecting different outcomes. This is as effective as banging our … Continue reading
Accessibility impossibilities
As I travel America’s highways and byways, sharing my stories about living with Parkinson’s, I’ve found that not all “handicapped accessible” hotel rooms are created equal. The deal breaker is … Continue reading
Thanks to our “Tulip Spotters”
A big thank you to our volunteer “Tulip Spotters” who responded right away to my call to post Parkinson’s-related events on a free, online, interactive calendar at http://www.pdcalendar.info The idea … Continue reading
“Tear down the walls”
With Parkinson’s Awareness Month just around the corner, my husband, Tony, and I are gifting a free, online, interactive calendar http://www.pdcalendar.info to the extended Parkinson’s community. This shared, single space will … Continue reading
My computer mouse is out to get me
Lately, it seems my computer mouse is out to get me, much like the blood thirsty plant, Audrey II, in the classic story, Little Shop of Horrors. My mouse prefers … Continue reading
Living Well with Parkinsons Disease 