Living Well with Parkinsons Disease

Dancing in the Rain: Lessons Learned on my Personal Journey with PD (more at Copyright 2013 Sheryl Jedlinski

Gone in a blink

Sitting beside my husband witnessing the marriage of one of our youngest son’s earliest buddies, I wondered where the time had gone. In the second it takes to blink, 30 … Continue reading

August 1, 2014 · 6 Comments

Talk of using walker abruptly ends PD honeymoon

My 15-year honeymoon with Parkinson’s disease ended unexpectedly when my new physical therapist, Mia, completed a three-hour evaluation and recommended I start using a walker. Her words hit me like … Continue reading

July 24, 2014 · 9 Comments

An American hero, a role model for all time

Seventy-five years ago this Fourth of July weekend, New York Yankees first baseman Lou Gehrig voluntarily bid farewell to the sport he loved. It took a progressive, incurable disease that … Continue reading

July 5, 2014 · Leave a comment

Let the buyer beware

  I was commiserating with a friend about our various aches and pains when she asked if I had tried emu oil. She had heard television’s Dr. Oz, a board … Continue reading

June 19, 2014 · 4 Comments

Fox initiative promises patients seat at the table

When asked to be an ambassador for a new health initiative co-sponsored by the Michael J. Fox Foundation (MJFF) and Abbvie — I jumped at the opportunity to be part … Continue reading

May 21, 2014 · 2 Comments

Coming soon to a city near you: Partners in Parkinson’s

The Michael J. Fox Foundation (MJFF) is coming to a city near you to guide  you in assembling your best possible team of care providers, taking an active role in … Continue reading

May 8, 2014 · 3 Comments

Always wear clean underwear

Getting dressed takes longer and longer as Parkinson’s disease progresses, prompting us to continually seek ways to shave a few minutes off the process. This is why I wear my … Continue reading

May 2, 2014 · 5 Comments

Lame excuses for not exercising

According to the National Health Research Institute in Taiwan just “15 minutes of exercise a day, or about 90 minutes a week, can add years to your life.” Now they … Continue reading

April 30, 2014 · 5 Comments

Raising awareness means telling our stories

I recently noticed that Holocaust Remembrance Day typically falls during Parkinson’s Awareness Month. How is it that one of the most heinous crimes against humanity came to be memorialized against … Continue reading

April 28, 2014 · 6 Comments

Your help will make the difference

Halfway through Parkinson’s awareness month, it occurs to me that we are doing the same things we’ve always done and expecting different outcomes. This is as effective as banging our … Continue reading

April 14, 2014 · 2 Comments

Accessibility impossibilities

As I travel America’s highways and byways, sharing my stories about living with Parkinson’s, I’ve found that not all “handicapped accessible” hotel rooms are created equal. The deal breaker is … Continue reading

April 8, 2014 · Leave a comment

Thanks to our “Tulip Spotters”

A big thank you to our volunteer “Tulip Spotters” who responded right away to my call to post Parkinson’s-related events on a free, online, interactive calendar at The idea … Continue reading

March 23, 2014 · Leave a comment

“Tear down the walls”

With Parkinson’s Awareness Month just around the corner, my husband, Tony, and I are gifting a free, online, interactive calendar  to the extended Parkinson’s community. This shared, single space will … Continue reading

March 9, 2014 · 4 Comments

My computer mouse is out to get me

Lately, it seems my computer mouse is out to get me, much like the blood thirsty plant, Audrey II, in the classic story, Little Shop of Horrors. My mouse prefers … Continue reading

February 25, 2014 · 1 Comment

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