Living Well with Parkinsons Disease

Dancing in the Rain: Lessons Learned on my Personal Journey with PD (more at Copyright 2013 Sheryl Jedlinski

Your help will make the difference

Halfway through Parkinson’s awareness month, it occurs to me that we are doing the same things we’ve always done and expecting different outcomes. This is as effective as banging our … Continue reading

April 14, 2014 · 2 Comments

Accessibility impossibilities

As I travel America’s highways and byways, sharing my stories about living with Parkinson’s, I’ve found that not all “handicapped accessible” hotel rooms are created equal. The deal breaker is … Continue reading

April 8, 2014 · Leave a comment

Thanks to our “Tulip Spotters”

A big thank you to our volunteer “Tulip Spotters” who responded right away to my call to post Parkinson’s-related events on a free, online, interactive calendar at The idea … Continue reading

March 23, 2014 · Leave a comment

“Tear down the walls”

With Parkinson’s Awareness Month just around the corner, my husband, Tony, and I are gifting a free, online, interactive calendar  to the extended Parkinson’s community. This shared, single space will … Continue reading

March 9, 2014 · 4 Comments

My computer mouse is out to get me

Lately, it seems my computer mouse is out to get me, much like the blood thirsty plant, Audrey II, in the classic story, Little Shop of Horrors. My mouse prefers … Continue reading

February 25, 2014 · 1 Comment

I have a Parkinson’s dream

Like the late Martin Luther King Jr., I, too, have a dream inspired by experiences that have changed the way I see the world going forward. My dream is that … Continue reading

January 21, 2014 · 2 Comments

Friends smooth our journey with Parkinson’s

If there is a bright side to living with Parkinson’s, it is the friends we make on our journey, who help us live each day to its fullest – laughing … Continue reading

January 13, 2014 · 3 Comments

Make your 2014 resolutions “life-changers”

When making your New Year’s resolutions, you may want to think beyond traditional self improvement goals, focusing instead on goals that would not only make your life better, but also … Continue reading

December 30, 2013 · 4 Comments

This seat is taken!

How many of us, exhausted from running errands, have opted to wait in the car while our spouse handles the last few stops on their own? I do this often, … Continue reading

December 28, 2013 · 2 Comments

Keep fighting the good fight

Early in my journey with Parkinson’s, I drafted a list of potential motor and non-motor symptoms that I feared most. I designated the top three – dementia, hallucinations, and dyskinesia … Continue reading

December 9, 2013 · 3 Comments

“At least you have your health…”

When one friend confides in another about a problem, the conversation often ends with, “At least you have your health.” But what about those of us who don’t? What is … Continue reading

November 22, 2013 · 1 Comment

My lead foot

Yesterday was not one of my better days. On my way to meet a friend for lunch, I didn’t even get two blocks from home when a waiting police officer … Continue reading

November 15, 2013 · 2 Comments

Parkinson’s means always having to say, “I’m sorry”

Parkinson’s disease means always having to say, “I’m sorry.” I’m sorry I spilled my drink. I’m sorry I dropped my napkin. I’m sorry I don’t remember, I fell, I had … Continue reading

November 5, 2013 · 6 Comments

We teach doctors how to treat us

Dr. Phil used to say, “We teach people how to treat us.”  Nowhere is this more true than in the medical community. Against my better judgment, I recently gave up … Continue reading

October 30, 2013 · 3 Comments

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