Living Well with Parkinsons Disease

Dancing in the Rain: Lessons Learned on my Personal Journey with PD (more at Copyright 2013-20 Sheryl Jedlinski

“Your Stamina Sucks”


“Sheryl’s stamina sucks.” These were the exact words my physical therapist wrote on my reevaluation form. She drew a grumpy face for added emphasis.

“I hope that’s a new medical term and doesn’t mean what I think it means,” I told Mia, who chuckled aloud. “If you expect me to give this note to my neurologist, and return it to you with her signature, you are going to be very disappointed.”

Ironically, this issue came up at what I would have otherwise considered a high water mark in my physical therapy. I had just completed the six-minute walk test, without stopping to catch my breath, and finished only 100 steps behind the average for a healthy woman my age.

“Don’t let that go to your head,” Mia warned me. “You were significantly short of breath for the last two and a half of the six minutes.”

“Okay, but I’m still alive and kicking aren’t I?”

Mia shook her head resolutely, as if daring me to disagree with her plan. “You know that this does not negate our earlier discussions about your need to improve your endurance, don’t you?”

“Agreed,” I said. “But by the same token, I should get credit where credit is due, like for walking far better than either of us expected.”

I didn’t state the obvious. I would have passed out before taking a break and not finishing the walk within the prescribed time. Mia reminded me that I had set the bar very high and would have to exceed my performance at my next reevaluation in order to show improvement. The question remains what activities can I do to preserve my spine and joints, increase my stamina, and relieve the pain associated with spinal stenosis, sciatica, two bionic knees, arthritis, and Parkinson’s rigidity.

Some of my favorite activities would have to go and others would take their place. Treadmilling, even at a relatively slow speed for a short time, had one of my bionic knees rebelling almost from the get go, forcing me to back off. I could swim, but only the side stroke. Getting a walker was non-negotiable. Instead I showed up for therapy carrying  colorful, aluminum walking poles, which convey a younger, more athletic image (okay, that may be a bit of a stretch, but everything is relative.) and allow for the possibility that I could pursue everything from mall walking to hiking, should I decide to do so.

5 comments on ““Your Stamina Sucks”

  1. Tem and Larry Williams
    August 23, 2014

    Really, Sheryl, before you know it you will be skiing with those poles just to prove a point….Hope the workout yesterday lasts the whole weekend….have fun at the fair…:)

  2. Angie Bowen
    August 23, 2014

    Sheryl, I love my hiking poles too. And the more I use them, the younger I feel. Keep up the good work!

  3. Wendy
    August 24, 2014

    I’m happy to know you! 🙂

  4. Cindy Smith
    January 6, 2015

    I’d like to know where (in Nova Scotia) I can order a pair of ‘stability poles’ .

    • mydancingintherain
      January 6, 2015

      I suggest you try any of the large outdoor or sporting goods stores. In the US, that includes REI and LL Bean.

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This entry was posted on August 23, 2014 by in Drugs, Exercise, Parkinson's symptoms, Physical Therapy, Treatments.

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