Living Well with Parkinsons Disease

Dancing in the Rain: Lessons Learned on my Personal Journey with PD (more at Copyright 2013-20 Sheryl Jedlinski

Creating memories for our grandchildren


Grandchildren are parents’ reward for raising children of our own. We begin anticipating the arrival of grandchildren from the day we learn that our kids are getting married. We dream about places our little people will take us, and the memorable things they will do. Our lives are enriched simply because they exist. I’ve seen it doesn’t take long, however, for pure joy to be tempered by a realization that our grandparent role may be more limited than we had planned. For example, as a friend of mine recently discovered, something changes when our adult children become parents and see our tremors and dyskinesia in a new light, as if for the first time. We suddenly appear more weak, frail, and off balance than they remember, and they are reluctant to have us hold their new baby; our grand baby. Many healthy first time grandparents feel unsure of themselves caring for a newborn after so many years. Add shaking from Parkinson’s into the mix and just about everyone is experiencing new territory.

I treasure memories of Sunday afternoons spent with my grandmother. She told me stories of her own youth, taught me children’s songs in French, and played card games with me. When I stayed overnight at her place, she spoiled me with breakfasts of Cocoa Puffs swimming in half and half, a treat I would never get at home.

I always assumed that I’d have this special relationship with my own grandchildren, but now I fear that Parkinson’s could try to rob me of this long-awaited experience. This is why my heart goes out to those who share with me their very real stories of fear, trepidation, and uncertainty on becoming a new grandparent. I encourage them to fight back by keeping a grandparent journal. Guided questions help us recall our earliest memories and include them as part of the life stories that we will gift to our grandchildren, so they can carry part of us forward into the future. With each memory we share, we hand over a piece of who we once were before Parkinson’s co-opted our brains. This is how I intend to move forward, and this is how all of us can beat Parkinson’s.

2 comments on “Creating memories for our grandchildren

  1. 100wickedwords
    February 13, 2015

    Your wisdom never ceases to amaze me. Beautifully said, Sheryl.

  2. Claudia Revilla
    February 13, 2015

    Dear Sheryl, I feel also uncertainty for the parenthood and grandparenthood you describe, we will not be the average grandmother, we will be the special grandmother in so many ways. I always said that I wasn’t going to be the average mom and voila!! I am not. The lessons my children are learning because of my PD are making them more sensitive and caring and they will do the same with their children, we are already changing the circumstances of our future generations.
    Love is unmeasurable and unstoppable by any reason, disease or circumstance. Writing today our messages for tomorrow is a very wise action. But by telling our loved ones today how much we love them, the message will travel to our grandchildren. Writing our stories will give them advise and love and will make our presence and memories stronger. Something PD will never take away.
    I love your writing and your grandchildren will be very entertained and loved when they read tomorrow what you are writing today.

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This entry was posted on February 12, 2015 by in Family Life.

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