Living Well with Parkinsons Disease

Dancing in the Rain: Lessons Learned on my Personal Journey with PD (more at Copyright 2013-20 Sheryl Jedlinski

In “warrior mode” again

By Sheryl Jedlinski

For the past two weeks, I’ve searched for the words to make my medical news more palatable, but nothing I say can change the fact that after more than three years in remission, my cancer has returned. I knew all along that a recurrence was likely as my cancer was already stage 4 when it was discovered. If not for my surgeon’s Herculean efforts, and the tireless support of an army of friends and family members, I would not have survived this long.

My most recent “eyes to thighs” PET scan revealed two small cancerous spots, not imaged on previous scans. Unavoidably, a few dormant cells remained from my original bout with cancer. Recently, they began to multiply and reappear. The good news is that this should be much easier to deal with than the first time, not only because we caught it early, but also because there are many new potentially viable treatment options available.

New and promising treatments are based on studying particular substances in the tumors. Laboratory testing is used to identify genetic markers and tell the doctor which drugs are likely to work best. Already doctors are obtaining much better results with fewer side effects.

Also promising are immunotherapy, which improves the body’s natural defenses to fight cancer, and clinical trials, of which there are many for this type of cancer.

Finally, if none of these work out, the plan is to repeat the same chemotherapy regimen that worked so well for me the first time around.  We have time to determine the best approach which will start in four to six weeks.

Even with so many options, thinking about the future scares me, as there are still too many unknowns. I hesitate to plan even a couple of weeks out, not knowing how I will feel when the day comes. I force myself to do it anyway, because having things to look forward to is key to living longer.

While life is going to be scary and difficult for awhile, I know it will get better again because I am a warrior and I have already survived the worst. This time, I feel I have the upper hand. Knowing how I responded to previous treatments will help doctors plan our new strategy. Knowing what treatment demands of me, I have already begun preparing, both mentally and physically. Most importantly, I have a secret weapon I didn’t have the first time – my 21-month-old granddaughter, Parker, whose life I intend to be part of.

The one person missing, however, is the surgeon who saved my life initially. She moved last week to take a key position in a gyne-oncology program in California. I sent her off with my blessing, knowing she was born for bigger challenges than me, though many who know me best would argue there is no such thing.

10 comments on “In “warrior mode” again

  1. parkinsonscare
    November 14, 2018

    You are a warrior! I will pray for strength and a sharp sword!

  2. Lynn Croll
    November 14, 2018

    Sheryl, I am so sorry to hear this news. You are in my heart and in my prayers. 🙏👍

    Sent from my iPhone


  3. Larry Williams
    November 14, 2018

    Sheryl….another wonderful, if not disturbing entry. You lay the facts, fears, hopes and attitude right out in front as you are facing them…nothing sugar coated here, but your optimism, great medical team, and downright grit make the description of you as a warrior in this arena as the perfect synonym. Hugs, tem

  4. Genevieve & Cathy
    November 14, 2018

    Are thoughts and prayers are with you!

  5. Karen Handler
    November 14, 2018

    Good luck with any new option u choose,
    With your good attitude u will achieve and overcome any obstacle !
    Good luck!
    Thinking of u, your Parker is the greatest motivation, I understand fully!

  6. Sharie Freudenberger
    November 15, 2018

    First of all, your writing is exquisite, your most intelligent evaluation of all sides of the issue is so “right on”. You are one fabulous person who through it all is there to offer insight and help to all sorts of others even though at the same time, you are suffering. Thank God for Parker and for your incredibly positive attitude. God bless you and this comes with many prayers. Love you much.

  7. Diane Heller
    November 15, 2018

    Dear Sheryl…a friend since 3rd grade! I visited with you when you were first going through treatment and was amazed by your courage and positive attitude in the face of scary stuff! One year later I was diagnosed with breast cancer. You gave me the courage and positive attitude to face chemotherapy, all the side effects and surgery! You are in my thoughts and prayers! Let’s chat soon!

  8. Barb
    November 15, 2018

    So sorry. You truly are a warrior. You’v already proven that. Parker is your special super power. It’s amazing how they can inspire us to fight. You also have wonderful family and friends.
    Love & hugs

  9. Gayla Doughty
    November 15, 2018

    You are in my thoughts and prayers as you face this life challenge. Your strength, courage, a sprinkle of humor, and “keep on keeping on” attitude are an inspiration. Wrapping you in hugs as you continue on “one day at a time”.


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This entry was posted on November 14, 2018 by in Cancer, Coping Strategies, Family Life, Friends, Grandparenting.

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