Living Well with Parkinsons Disease

Dancing in the Rain: Lessons Learned on my Personal Journey with PD (more at Copyright 2013-20 Sheryl Jedlinski

WPC delivers message of hope and perseverance in fight against PD

wpc2013signature_lowresThere was a feeling of electricity in the crowd at the opening ceremony of the third World Parkinson Congress in Montreal. Some 3,150 attendees — doctors, researchers, allied health professionals, care partners, and people with Parkinson’s — travelled from 44 countries to participate in an ongoing international dialogue aimed at identifying the best treatment practices and ultimately finding a cure for Parkinson’s. The theme of the evening, and the conference as a whole, was one of hope and perseverance, and encouraging patients to become actively involved in their care decisions and in clinical trials.

“This Congress is about community and hope,” said WPC Ambassador Bob Kuhn in his welcoming address. “The biggest difference between illness and wellness is that illness starts with the word “I” and wellness starts with the word “we.” We” is the future – we are the future. What we are doing today will be the future, and it is bright and positive.”

Surveying the crowd in the huge ballroom, I noticed that the “face” of Parkinson’s seemed much younger and more mobile (able to get around without a wheelchair or walker) than it had when I was diagnosed 15 years ago. Is it because I’m looking at it through older eyes, because of the self selection process involved in deciding whether or not to travel to and participate in an international conference, or because more people are being diagnosed at earlier ages? Whatever the reason, they were ready to learn about the latest research, promising therapies, clinical trials, and strategies for improving quality of life.

Tim Hague, winner of the 2013 Amazing Race Canada, likened his race experience to his Parkinson’s. “The one word that I came away with is perseverance. You never know where the next bit of luck is going to come from, what the next good thing is going to be. You can’t give up. You have to persevere. Many thousands of people are putting their time and their energy into trying to find a cure and making life better for people with Parkinson’s. A massive number of people are behind us, so don’t give up.”

3 comments on “WPC delivers message of hope and perseverance in fight against PD

  1. Tem and Larry Williams
    October 3, 2013

    Your blogs are awesome! The message you are gleaning from these wonderful speakers and your own observations need to be heard in just the way you are sending it….from the heart with an optimistic approach, which is also from the heart….you go girl…you’re the best! tem

  2. Ronald
    October 3, 2013

    If only the scientests and researchers experience what we are going through even if it means only for a day then they would speed up the cure for parkinson

  3. Kimberly Warren
    October 4, 2013

    Thank you for this very inspiring message!

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