Living Well with Parkinsons Disease

Dancing in the Rain: Lessons Learned on my Personal Journey with PD (more at Copyright 2013-20 Sheryl Jedlinski

Spontaneous reunions at WPC 2013

wpcI admit that initially I was hesitant about attending the 2013 World Parkinson Congress here in Montreal. I wasn’t sure that I wanted to see, hear, and talk about Parkinson’s disease for four straight days. While there is no denying that PD is a constant companion, I try to make it a silent partner. Then too, I was afraid to see how much PD had advanced in friends I haven’t seen in several years. More to the point, I was afraid to look into their eyes and see the reflection of how they think I am doing, knowing that even the smallest detail doesn’t go unnoticed among those on our shared journey.

My fears disappeared, however, as soon as my husband and I arrived at the convention center. There, at top of the escalator, stood a group of friends from far and wide ready with big hugs, stories of their trips in, and much laughter. It was like walking into a class reunion, only better. We quickly reassured ourselves and each other that we are all doing well. Had we planned to meet at that very spot at a set time, it never would have happened… not with 3,150 people registered for the Congress.

Walking around the convention center, I realized how many people I’ve come to know over the 15 years since my diagnosis — many who have helped me see my way through some of my darkest times, and others who were kind enough to stop me and tell me how my stories on have made a positive difference in their lives. Who can ask for more than that? Life is all about “paying it forward.”

PS — Please stop by the Renewal Room at 3 p.m. on Friday for a presentation called, “Sometimes you just have to laugh.” My partner Jean Burns and I would love to see you there.

5 comments on “Spontaneous reunions at WPC 2013

  1. Suzanne English
    October 2, 2013

    Hope to join you sometime. The feeling you shared at the beginning of your message is exactly how I felt the first time I went to a Parkinson’s support group. I’ve come to embrace that group as we travel our journey together.

  2. Jenny
    October 2, 2013

    Glad it was such a positive experience, although you are the queen of positive in my book!

  3. Steve
    October 2, 2013

    Keep it up mom!

  4. jillianmcarson
    October 9, 2013

    Im sad I didnt get to meet you Sheryl

  5. Dilys Parker
    October 16, 2013

    Sorry we did not meet Sheryl

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